Rare disease sufferer raises charity cash

A BELPER woman who suffers from a rare disorder that has left her in a wheelchair is organising a fundraising event to generate money for a charity close to her heart.

Kerry Bull, 32, who lives on Windmill Rise, Belper, with husband, Jim, and daughter, Shannon, suffers with Friedrich’s Ataxia, a condition that attacks the nervous system, affecting co-ordination and balance.

Despite living with the hereditary condition all her life, she is organising a raffle, tombola, skittles, cake stall, magic, camel racing, four live bands and a raffle at the Greyhound Inn on Whitemoor Lane, Belper in aid of the Ataxia UK charity.

In February 2008, she overcame her condition to jump 10,000 feet out of a plane to raise funds for the same charity.

“I am a sufferer of this rare untreatable condition and in an attempt to raise funds for research, I also hope to raise awareness as much as I can, she said.

“The whole day will be fun packed.”

Kerry has had the condition all her life, but only started showing signs of problems when she was about 12.

She was diagnosed at the age of 17 due to the fact there wasn’t much research into it at the time.

Ataxia is a neurological sign consisting of lack of voluntary coordination of muscle movements, as in walking.