A Belper family devastated when their three-year-old daughter died from a rare genetic disorder are planning a fundraiser in her memory.
Lyndsay Palmieri, 37, and husband Domenic, 40, were left devastated following the death of daughter Gabby last year.
Gabby had been born with a rare genetic disorder called Microvillus Inclusion Disease, which meant her small intestine didn’t absorb enough nutrients or fluids and she was dependent on a intravenous drip.
Gabby was put on the transplant list in November 2011 and underwent a transplant of the small bowel in March 2012. Unfortunately , the transplant led to complications and her immune system came under attack from the donor’s cells, leading to her skin blistering.
Gabby, younger sister to Eva, seven, lost her brave battle for life on October 23, just four days before her fourth birthday.
Mum Lyndsay, of Field Lane, said: “Gabby was hooked up to a drip for 20 hours a day. It was a rocky road to recovery and things didn’t go to plan and she developed a complication.”
Lyndsay added that life has been completely different since Gabby’s death.
She said: “We just want to try and give back to children in a similar position to Gabby. We also want to promote organ donation and there will be information about it at the event.”
The fundraiser, to be held on Sunday July 28, at Alfreton Golf Club, on Wingfield Road, will raise money for the Daniel Courtney Trust, which was set up by the parents of a child with the same condition.
Lyndsay and Domenic have now become trustees of the charity and want to help raise awareness of the condition.
Lyndsay added: “The event started as a golf day and has grown from there.”
The event begins at 3pm with golf, stalls and face painting. At 7pm there will be a live band and buffet. The event is free with people being asked to donate to the trust.
To donate online log on to makingitbetter.org.uk.