Mid Derbyshire MP Pauline Latham has written to the Department for Health over concerns for decision making in relation to genetic diseases.
The letter included a request to health secretary Jeremy Hunt to increase the length of time that data is collected on the evaluation of treatment funded by the Cancer Drugs Fund (CDF)
Junior health minister Nicola Blackwood replied: “The time that a drug stays in the CDF is therefore individually assessed and agreed with NHS England, the National Institute for Health and Care Excellence and the drug company concerned.
“This will depend on the disease concerned, the data that needs to be examined, the clinical trials that may be already running, and considerations of cancer treatment pathways in England.”
The CDF was established in 2011 to cover the costs of uncommon treatments in exceptional cancer cases.
The quality of data collected may have an impact on proving a drug cost effective in terms of clinical outcomes.